[Hope10]

Hi
I am wonder if you have Dilated cardiomyopathy? The reason I ask is because my Dad had been diagnosed with Non-ischeamic Dilated Cardiomyopathy last November 09'. Our family, me and my brother was told to have Echo screening to find out there is familial in our family. There are lots of concern and worry, stressful time!!
I was having problem with my Dad's doctor, nurses at the hospital. It is nightmare. My Dad first became ill for a long while until last August, he had a bad fell as he got black eyes and cuts around his head as he hit his head, between the wall and the car. He somehow fell over as I think he said he felt faint.
When he has to go in for his Echo to find out what wrong with his heart and to find out why he had those fell, etc. When he was told he need to stay in the hospital for a few days (It turn in to three weeks stay!) I had to stay with my Dad while my brother go on the bus to get Dad's bag. We don't drive! Anyway, the nice nurse at Echo, she gave my Dad lunch and cuppa of tea while we are waiting for a bed for Dad. Then until about 4pm, the nurse had to explain we have to go to E&A department. I thought why? what for? we just waiting for a bed for Dad. Anyway, we went there.
Ohh it is the worse i ever deal with! The nurses and doctor at the E&A seem are not aware of why Dad is there and they did not come, to talk to Dad or me, Did not gave my Dad any hot meal while he and Me waiting...I can not leave my Dad cos he was getting confused, stressful, worry and wanting to know why they are not coming to take him. I was getting really upset but I had to hold it in for my Dad's sake. If he seen me being upset then it can make it worse for him. In the end, at 9:30pm (!!!) The nurse came to get Dad and put him in the wheelchair, left him next to the ward, the amblance ppl was putting a very ill lady onto the bed. I went to get the bag for Dad, then I saw my Dad's face, he was so cross with me waiting to know why he in the wheelchair where going, where is the nurse? I was so angry. I was given a dirty look by amblance ppl as they thought I put my Dad to the ward. I went looking for the nurse as she was gone! I had to claim my dad down as i trying to find out what it goes on. I am not happy the way the nurse treat my Dad like that. Sh should have not left him like that as she should stop and explain to Dad abt she is going to do. My Dad is hearing but finding it very scary. I do not blame my Dad for being scary. She talk too fast i has to stop her and explain that I am deaf. Please talk slowly. She talk slowly but hard to read her lips. She took my Dad to the ward. If I had my way then I would take my Dad to the ward withouth that nurses. I had to explain to the nurses on the ward about him having no dinner etc. They said it is okay they can give him guess what? more lunch! he want is hot meal. As it is too late in the night for him to have hot meal. That is bad. Over the weekend, he was so confused and upset. He tried to phone my brother but he live far away, he can't drive. I live not far from the hospital. I told the nurse to text me in case if happing again. She agree as she is very nice lady and very helpful. Then Dad went on to other ward that is the worse as too many nurses and docotor have no times to talk to me! It took one nurse to talk to my Dad cos he was so worry about going home with tablets etc. I went to see pals and hoping they can able to help, they said yes can do provide me a intepreter. But unfor, that was on the day as I didn't know Dad was going home at the weekend. It was little too late. Disppointment. Next time if happing again I will go and ask Pals to book me intepreter. It got me very angry and sad that we had to be treat like this. I felt sorry for my Dad as the nurse at the E&A are the worse as they over looked my Dad.

I am worry about Echo is cos when I get the letter, still waiting as my brother already got his appointment on Wednesday for his Echo screening.
I would like to know how the person can explain to me if I got DCM (Dilated Cardiomyopathy)?
I had try to talk to my Dad's nurse and his doctor but they are too busy and had let me down. Mess up the appointment. I gave up in the end as I found a brilliant website that helps and answer to my questions when nurse and doctor do not have the time to answer to my questions.
the problem wth interpreter they had to be booked within two weeks notice.
So how I can get the hosptial to book it for me? (I was told by Pals as I must let the person know as this person do the appointment and this person must contact to Pals as they can able to book intepreter. Confused?! I thought mm, it is not easy as it sound cos how i can find out the person that does the appointemtnt? I am not sure on the letter for the appointment, would this person put their name on it or the doctor's name? Not good)I would have thought DDA is there to cover our right to access for the service that we need interpreter. Why we have to fight for intepreter? Not fair on us!
My biggest concern is if I am being diagnosed having DCM then how i get the support i need from the hospital?
Can i rely on them to book me interpreter?
How can I access to the information as I am aware there is no website for the deaf with DCM as I would like to hear from anyone having problem with their hospital by being diagnosed with their illness?
How they deal with it?
Did they get the support from social service or GP, anyone?

Kind Regards
Hope10

[Advert Bot]